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Charlie's Courage

A brave young boy fighting a rare and aggressive brain tumor with hope, strength, and love.

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Charlie is a bright, healthy, and energetic child whose laughter and curiosity filled every room. But in late 2024, after what seemed like a simple cold and pneumonia, his life changed forever. He began experiencing constant fatigue, hand tremors, blurry vision, and problems with balance and concentration. Concerned, his parents sought medical answers—never imagining the road ahead.

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On January 24, 2025, an MRI revealed the devastating news: Charlie had a malignant brain tumor. Further tests at SickKids Hospital confirmed it was a High-Grade Diffuse Midline Glioma (H3K27M mutation)—a rare, aggressive, and inoperable tumor located deep within his brain. Doctors explained that surgery was too risky, leaving radiation therapy and clinical trials as his only options.

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Charlie bravely began 30 rounds of radiation, while his family held onto hope for a clinical trial that might offer a chance at more time. Every day, his dad drives him to Princess Margaret Hospital for treatment, to Holland Bloorview for rehabilitation, and even to London Health Sciences Centre for trial opportunities—having left his job to be by Charlie’s side. His mom, who manages her own chronic illness, provides strength and comfort, even as the family’s financial situation grows overwhelming.

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Through it all, Charlie continues to show remarkable strength and resilience. His courage inspires everyone who meets him, and his family’s love carries them through the darkest moments. Their journey is filled with hardship, but also with hope—that new treatments, community support, and the power of love can help Charlie keep fighting.

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